This last week of the summer recess I have met with Linda Endicott who co-ordinates the Motor Neurone Disease Association branch in Blackpool, Fylde and Wyre. This is a charity particularly close to my heart after I lost a friend, Rose, to the disease a couple of years ago.
Motor neurone disease (MND) is a progressive disease that attacks the motor neurones, or nerves, in the brain and spinal cord. This means messages gradually stop reaching muscles, which leads to weakness and wasting. MND can affect how you walk, talk, eat, drink and breathe. However, not all symptoms necessarily happen to everyone and it is unlikely they will all develop at the same time, or in any specific order. Although there is currently no cure for MND, symptoms can be managed and organisations like the MND Association are on the front line to living with MND.
I’m proud to be able to support the charity locally, and when I am in Westminster I am an active member of the cross-party group of MPs looking at policy to better support people with MND, their carers and their families.
This was a particularly poignant week to meet with the MND Association as I would have loved to have had Rose at my wedding. Instead I asked for donations to the Association in place of wedding gifts.